I was a pedestrian struck by a car (hit and run) on 9-4-2013. It was a nightmare. Might have been an “attempted manslaughter” thing. I’ll honestly never know – to be honest – but that’s alright. I survived! I’m still here! I type WAY better than I talk. And if I could walk as well as I type, I’d be doing a lot better. My bones and nerves were affected by the impact not only from the vehicle that hit me, but by my brain injuries and ongoing (worsening) ataxia issues. It also caused two kinds of amnesia.
I’ve always had ataxia (much like Parkinson’s disease) which is “triggered” and becomes active – it is giving me all sorts of issues. Trouble speaking. Trouble with grip and muscle control. Issues with balance and horrible vertigo, and nausea. Eventually I’ll be in a wheelchair – hopefully not for a lot of years! With the right supplements and phys-rehab – with long-term treatments – I can stave it off for a bit of time, but eventually it’ll just “be what it is.” — Unless of course neuroscientists can figure out how to treat and prevent that too! (fingers crossed)
I’m guest speaking about “TBI and Balance” to a group of college students in Kansas City next weekend. They’re about to graduate the physical training programs (who may be inclined to study for physical rehabilitation.) I’m hoping to enlighten them about possible clients and patients they’ll come across during their future careers. Maybe with being well-informed about brain injury *(which more people have in America than heart diseases)* they’ll be better for the TBI survivors and their outcomes as well.
I’m working on pamphlets, booklets, and specifically created journals to give to Dr’s, ER’s, and Clinics for brain injury and amnesia/memory loss survivors to utilize. The pamphlets will have information vital to their advocacy and what they should seek next. The booklets will be for patients to use at the beginning of their journey towards long-term treatment plans so they’ll get the best of what medical care has to offer. The journals will be for long-term symptomatology record keeping as well as personal growth charting. It’ll help health-care pros to keep better track of what their patients are going through – as well as for survivors to see and know what has changed and that they have a level of control over what’s going on with them.
Most of us survivors feel SO out of control and that we’re helpless to our injuries and side-effects. I want and NEED to change that. I want to make a better connection for us to the medical community pros that’re responsible for our healing processes. But we as “consumers” of medical care need to be able to give them the MOST information humanly possible for those pros to be able to do their jobs as best they can for our best outcomes. It’s going to change the process of how they deal with us, and how we deal with them.
Between migraines, memory issues, concentration lapses, and totally feeling beaten and unhinged, it’s hard to keep track not only of day to day things, but of details. These booklets and journals will be a HUGE tool in the arsenal of healing and well-being.
Thanks for reading!